We’ve struggled over the last year.

While it’s our normal pattern to make it from one day to the next, keeping various plates spinning and everyone in one piece, we’ve now entered the world cup of disability parenting – transition. 

Looking to the future is a horror most parent carers try to avoid; still, I thought I had an understanding of what was ahead as we moved from child to adult services, left school and so on. Nope. For months I’ve wanted to blog about the dysfunctionality of it all. There hasn’t been the time. 

Many people run on empty as we approach the holidays. It’s been worse than usual for us in recent weeks (a combination of work and various issues for L) but this weekend we’ve had a moment of crisis with a critical piece of his equipment. It’ll mean a lot of panicked phone calls over the next few days and hoping that our public services can pull off a miracle and come up with a quick solution. 

I can’t really articulate the impact of this sort of problem when you’re already low on reserves but we’ve all read enough mental health articles to know that living in this fight-or-flight heightened state for prolonged periods isn’t a good thing. 

So once more unto the breach.

This latest crisis doesn’t have anything to do with the transition process as such but it reminds me that  it takes everything we have to get through daily life. What the system demands of you to deal with transition on top of this feels simply unbearable. Once we get over this crisis, better get on with those blogs – talking about it is, after all, a start.